lazy bowel
Well I'm all concerned that my bowels aren't doing their job. The doctors told me it can take awhile but you know these days I don't believe it till I read it online. Doctors have such a nasty habit of lying to prevent fear that I don't trust them unless it's bad news. So I've been home since Saturday and still not getting proper results in my colostomy bag. My tumour still tries to make me shit it out every time I need to pee. I figure it's the full bladder pressing on it triggering my rectum to get stupid. Trying to say "no" to it is like stopping a train with a baby carriage. It kind of does stop, but not before you're suffering and there's blood.
So I went searching. Up to 21 days one person waited. given that my bowels were dead to the world for months, I get it, could be more than that. I'm eating and it's good and if I eat enough this time, it should push through instead of just blocking, so I won't slow down eating over it. I'm so anemic the doctors are worrying they might need to do transfusions and since iron supplements also slow the bowel, it's iron rich foods for me. Laxatives can create issues with the recent surgery too, so again, not a good choice.
What blows my mind is all these posts saying they weren't released from hospital till the bowels got going, and describing the food they were fed. They were fed actual food, not food facsimiles, and kept in hospital all that time. I, on the other hand, was sent home extra early for my own good! Wow. Our system is so broken. You get what you pay for. It's free, but.... wow. It's worth that much, isn't it? Worth less, even. Shame on you Brad Wall and the Sask Party, for taking your budget cuts out on our most vulnerable people. It's criminal.
So I'm already getting stronger. I made brekky for Dan and myself this morning. Went all day by myself after we got back from things in the morning and Dan worked late.
Oh yesterday. Oh me oh my what a trying day it was. It should have been a lovely day. In normal times I'd have been raking up the yard in the lovely spring sunshine, getting my tan started. However, we were up and out by 8:30 am to get a bit of plastic taken off my stoma. That's the lump of ugly covered in plastic bag that should emit poop and just emits foul stenchy water and air. The plastic bitty was keeping things popped up above the surface till it healed enough not pop back down. Geeze, I thought my stitches should be ready to come out soon, but it's another week. That is bigger cutting trauma than I realize. Again, a factor in why my bowels are acting like a teenage girl with her first zit breakout. My stomach, I'm proud to say, is big enough to hold a proper meal now. Not like most folks would think, where you could down half a pizza, but two eggs and two slices of bacon and a glass of juice big. From eating meals that were chihuahua portion sized, so I'm pleased about that.
If only the whole system backup doesn't start forcing me to shrink my meals again I should be recovering faster and faster. I certainly feel less weak.
Oh yes, yesterday, I was telling you about that. We got to the hospital in plenty of time with 20 minutes to spare, so we waited from 8:40 am till 10:20 am to see the doctor who'd been flipping me attitude about missing the monday morning appointment for which I could find no paper record. I still don't know where my discharge papers went from the hospital. I keep track of stuff, so where the heck did they go? I have the ostomy papers with which the discharge papers should have been. I remember holding them in my hands as we passed the desk, but ? Well it was a rough time, right?
After the rod removal we were going to just "pop" by the blood clinic in the hospital to get two simple tubes of blood drawn. I've done this many times in the past, it's quick, nearly painless, and you wait about 20 minutes in a mostly empty waiting room. No biggie, right? Biggie. The room is over-capacity with a line out the door. WHAT? How in hell? Must be this location, lets drive to the one across town, it's always quiet there.
Nope. It's a fasting blood test so I haven't eaten this morning. I've now walked hither and thither and yon. Even with my can to hand (thankful I brought it) I'm having a hard time keeping going. I learn every one of their five clinics is packed over capacity every day. Open another clinic, you pecuniary jerks! You can't take a sick person and make them fast for 14 hours then shove them in a hot crowded room with possibly no leftover seat (people were nice and made room for me) like that!! After an hour I toddled to the desk in tears saying I needed to give up and go home but instead they zipped me right in for my two minute bloodletting. I guess the tears made an impression. A normal person would have passed out by then, but I've never passed out in my life. That indomitable will that comes with autism, and my cane, held me up. Apparently they have an online check-in process that helps bypass some of the waiting but even so, it's not right. Just not right. It's not even exactly government funded since it's a private subcontractor firm. To think I can't get out of this fucked up province till I'm not sick anymore, and must rely on it to make me well? Oh well, it might just as bad in BC or anywhere else and how would I know? I'm so grateful for all my personal knowledge. It's what's going to save me in the long run. Knowing what food has in it, how to heal weak people, how to do so much, how to understand what's going on, being able to understand the new learning I do, so much.
So I went searching. Up to 21 days one person waited. given that my bowels were dead to the world for months, I get it, could be more than that. I'm eating and it's good and if I eat enough this time, it should push through instead of just blocking, so I won't slow down eating over it. I'm so anemic the doctors are worrying they might need to do transfusions and since iron supplements also slow the bowel, it's iron rich foods for me. Laxatives can create issues with the recent surgery too, so again, not a good choice.
What blows my mind is all these posts saying they weren't released from hospital till the bowels got going, and describing the food they were fed. They were fed actual food, not food facsimiles, and kept in hospital all that time. I, on the other hand, was sent home extra early for my own good! Wow. Our system is so broken. You get what you pay for. It's free, but.... wow. It's worth that much, isn't it? Worth less, even. Shame on you Brad Wall and the Sask Party, for taking your budget cuts out on our most vulnerable people. It's criminal.
So I'm already getting stronger. I made brekky for Dan and myself this morning. Went all day by myself after we got back from things in the morning and Dan worked late.
Oh yesterday. Oh me oh my what a trying day it was. It should have been a lovely day. In normal times I'd have been raking up the yard in the lovely spring sunshine, getting my tan started. However, we were up and out by 8:30 am to get a bit of plastic taken off my stoma. That's the lump of ugly covered in plastic bag that should emit poop and just emits foul stenchy water and air. The plastic bitty was keeping things popped up above the surface till it healed enough not pop back down. Geeze, I thought my stitches should be ready to come out soon, but it's another week. That is bigger cutting trauma than I realize. Again, a factor in why my bowels are acting like a teenage girl with her first zit breakout. My stomach, I'm proud to say, is big enough to hold a proper meal now. Not like most folks would think, where you could down half a pizza, but two eggs and two slices of bacon and a glass of juice big. From eating meals that were chihuahua portion sized, so I'm pleased about that.
If only the whole system backup doesn't start forcing me to shrink my meals again I should be recovering faster and faster. I certainly feel less weak.
Oh yes, yesterday, I was telling you about that. We got to the hospital in plenty of time with 20 minutes to spare, so we waited from 8:40 am till 10:20 am to see the doctor who'd been flipping me attitude about missing the monday morning appointment for which I could find no paper record. I still don't know where my discharge papers went from the hospital. I keep track of stuff, so where the heck did they go? I have the ostomy papers with which the discharge papers should have been. I remember holding them in my hands as we passed the desk, but ? Well it was a rough time, right?
After the rod removal we were going to just "pop" by the blood clinic in the hospital to get two simple tubes of blood drawn. I've done this many times in the past, it's quick, nearly painless, and you wait about 20 minutes in a mostly empty waiting room. No biggie, right? Biggie. The room is over-capacity with a line out the door. WHAT? How in hell? Must be this location, lets drive to the one across town, it's always quiet there.
Nope. It's a fasting blood test so I haven't eaten this morning. I've now walked hither and thither and yon. Even with my can to hand (thankful I brought it) I'm having a hard time keeping going. I learn every one of their five clinics is packed over capacity every day. Open another clinic, you pecuniary jerks! You can't take a sick person and make them fast for 14 hours then shove them in a hot crowded room with possibly no leftover seat (people were nice and made room for me) like that!! After an hour I toddled to the desk in tears saying I needed to give up and go home but instead they zipped me right in for my two minute bloodletting. I guess the tears made an impression. A normal person would have passed out by then, but I've never passed out in my life. That indomitable will that comes with autism, and my cane, held me up. Apparently they have an online check-in process that helps bypass some of the waiting but even so, it's not right. Just not right. It's not even exactly government funded since it's a private subcontractor firm. To think I can't get out of this fucked up province till I'm not sick anymore, and must rely on it to make me well? Oh well, it might just as bad in BC or anywhere else and how would I know? I'm so grateful for all my personal knowledge. It's what's going to save me in the long run. Knowing what food has in it, how to heal weak people, how to do so much, how to understand what's going on, being able to understand the new learning I do, so much.